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NCLR, Equality California Applaud New Federal Report Urging Researchers to Collect LGBT Health Data


(San Francisco, CA, March 31, 2011)—A groundbreaking report released today by the Institute of Medicine urges medical researchers to include the lesbian, gay, bisexual, and transgender communities in health studies to gain a better understanding of their lives and unique health care needs at different stages of life.

Authored by leading experts on LGBT health, "The Health of Lesbian, Gay, Bisexual, and Transgender People: Building a Foundation for Understanding" concludes that the lack of sufficient health care data about LGBT people has resulted in an incomplete picture of the community's overall health needs. The report is the first to comprehensively analyze the LGBT community's health needs, providing a thorough compilation of existing data, and providing researchers with guidance about how to effectively continue to collect LGBT health data to fill in critical gaps.

One of the report authors, Family Acceptance Project Director Dr. Caitlin Ryan, a leading researcher on LGBT youth, has worked closely over the years with the National Center for Lesbian Rights and Equality California. She is a member of Equality California Institute’s LGBT Health and Human Services Network, and has been a vital part of the Network’s statewide efforts.

In discussing the report, Dr. Ryan said: "This report provides a roadmap for addressing the unmet health needs of LGBT people from childhood through later years. It legitimizes LGBT health research for the scientific community and academic institutions, and will change the way that LGBT health issues are talked about, taught about, studied and addressed in practice. It's the key to open institutional closet doors to reduce serious health disparities and to promote the well-being of LGBT people."

Said National Center for Lesbian Rights Executive Director Kate Kendell: "This groundbreaking report documents the urgent need for researchers to include LGBT people in all aspects of health care research. Without this data, our community will continue to face obstacles accessing health care and will continue to be underserved."

In California, Senator Christine Kehoe (D-San Diego) has introduced the Survey Data Inclusion Act (SB 416), sponsored by Equality California, which would require the state to add questions about sexual orientation, gender identity and expression, domestic partnership status and the gender of a spouse as part of the voluntary demographics sections in California's government surveys. Such data is already collected for other groups.

"We call on the California Health and Human Services Department to strengthen its efforts to eliminate health disparities for LGBT communities, and we applaud Senator Kehoe and the Institute of Medicine for their leadership in recognizing that investment in LGBT health is a crucial part of ensuring that LGBT people and families can contribute fully to our state's future," said Equality California Interim Executive Director Jim Carroll. "In a time of highly limited resources it is paramount that decision makers have relevant data to allocate those resources to achieve the greatest good. The lack of data about LGBT people and families continues to have a detrimental impact on the health of millions of people, particularly our most vulnerable community members whose unique health needs are invisible and literally uncounted in the state systems of care."

Equality California Institute has launched a variety of initiatives to address LGBT community health needs, including the LGBT Health and Human Services Network, which focuses on LGBT inclusive health data and the Reducing Disparities Project, to assess the mental wellness needs of LGBT communities across the state.


The National Center for Lesbian Rights is a national legal organization committed to advancing the civil and human rights of lesbian, gay, bisexual, and transgender people and their families through litigation, public policy advocacy, and public education.

Equality California is the largest statewide lesbian, gay, bisexual, and transgender rights advocacy organization in California. Over the past decade, Equality California has strategically moved California from a state with extremely limited legal protections for LGBT individuals to a state with some of the most comprehensive civil rights protections in the nation. Equality California has passed more than 70 pieces of legislation and continues to advance equality through legislative advocacy, electoral work, public education and community empowerment.

media contacts:


Erik Olvera
Director of Communications
National Center for Lesbian Rights
office: 415.392.6257 x324

Bethany Woolman
Communications Associate
National Center for Lesbian Rights
office: 415.392.6257 x305

EQCA logo

Vaishalee Raja
Communications Director
Equality California
Office: 323.965.8900
Mobile: 916.284.9186


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